Tag Archives: Celiac Disease

Life is a highway. I wanna ride it all night long!

Wow… ok, so much for my New Year’s resolution about sticking to a more consistent blogging schedule!  LOL!  Maybe my new resolution should be to work on better resolutions!  I’ll add that to this year’s list.  Jot that down.

So, I am going to justify my “leave” by saying that a ton of stuff has been going on this year that has kept me insanely busy – to the point that I have not stopped to give you the time you deserve!  So, let’s take a break, grab a Pumpkin Spice Latte, and curl up on the couch to catch up.  Actually, my couch doesn’t fit that many people, and I’m not a fan of PSLs, so how about I just blog about it?  😉

In order to not overwhelm you with the many new updates of my increasingly ceaseless lifestyle (yes, I’m being totally sarcastic…kind of… it HAS been busy), today, I’m only going to focus on the biggest recent change – travel.  I say “change”, but really, it’s a return to my life pre-transplant/sick-time…just different.  On one hand, I’m absolutely LOVING being “on the road again”, however, the highway is less straight and wide open than it used to be, it’s now filled with twists and bumps!  Before I got sick, I used to travel a lot for work.  I loved it!  I was adventurous and fearless trying new foods, meeting new people, dancing till my feet would literally throb… anything that created the most fun and crazy stories and memories!  These days, my travel has a completely different feel.  I’ve become this overly cautious grandma!  What???  What happened to me?  Who am I?

shocked-grandmother

Wait…what?

Well, I’ll tell you what happened… my “new life” happened.  I once had a panic attack in the middle of one trip fearing what would happen if I got sick while in a “strange” city.  Who would know what all my “issues” are if I couldn’t speak for myself?  Where is the nearest hospital/ER?  Would they be able to treat me?  (In one case, they even admitted they couldn’t!)  No one knows me or would even know what to do to help!

I am still going through a lot of changes post-transplant that require adjustment.  And that’s how I’m regarding this… an adjustment.  It’s all about being a boy scout.  (Not literally… I have no desire to be a 7 year-old boy!)  I have to be prepared.  I have to think 10 steps ahead of everything I do, and I’m learning more with each trip I take.

When I fly now, I have to be very careful of the recycled air and germy, nasty fold-down tables in the plane b/c of my low immune system (yes, I pack clorox wipes for this reason).  I have to take into consideration where I travel – no 3rd world countries – so even some work trips are a no-go.  When I am in a new city, I have to do extensive research on where I can eat due to the Celiac disease (there’s an awesome app for that – Find Me Gluten Free).  When I’m in large crowds, I have to be aware of who’s coughing, what I’m touching, where the nearest “exit” is in case I get glutened, and so on and so on.  It’s exhausting, but I’m learning to adjust to this “new life” one step at a time (as are my very patient friends – God bless them!).

Now, back to my resolutions… with this blog, I thee vow that I am making progress on my “accepting my new self” resolution.  I am no longer the same carefree Cameron Diaz character I once liked to believe I was, but I’m able to go out and see the world again and if that means I have to be more Howie Mandel with my actions so I can do so, I’ll gladly take it!  🙂

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Things I’m thankful for today:

1.  Getting to spend an amazing weekend in Nashville with my Jersey girls – Jen and Carm!  It’s so glad to see that sometimes some things don’t change.  🙂

2. Luck!  After accidentally taking a big bite of a panko-covered fried banana (I thought it was a GF cheese bread ball), I did NOT get sick from being glutened!

3.  Virgin Airlines – they have a fun and modern take on the flying experience, AND they offer safe GF food/snack options in-flight!  Woohoo!

4.  All beef hot dogs – for when there is nothing else in an all-fried/deli-filled food court to eat that’s safe to eat.

5.  That my mom’s foot is healing better after her 3rd foot surgery within the last few months.  Mom, your new toe will be something to show off in sandals for our Hawaii trip!  🙂

6.  My new gray sweater/cardigan – definitely the most comfy, squishy, warm sweater I’ve ever bought!  It’s like the perfect blanket for all those freezing planes (and meeting rooms).

7.  Shout out to my friends Elissa and Nick – they are going to have their first baby this Christmas!  Congrats to you both!  🙂

 

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This is the New Year!

Dallas New Years skyline 2016

Happy New Year 2016!!!!

I have said this once, and I’ll continue to say it until I’m blue in the face, but I LOVE the holiday season!  No, I’m not saying “holiday” to be all PC and such…I say “holiday season” because I include New Years Day in this beautiful package.  Not only have I been able to spend some good quality time with my favorite people, watching as they thoroughly enjoy their blessings, and personally benefiting from the amazing sales this month (75% off???  Hello new wardrobe!), but I’m also able to take the past year and relish in what I’ve gained…I’m able to look back over the year and see exactly what I have to be thankful for and how I’ve grown.  New Years Day is also a huge inspiration and symbol of hope for me.  It’s a new beginning and a way to start fresh with anything and pretty much everything.

So, using the lyrics of Great Big World’s awesome anthem to New Years, (go ahead and listen to it while reading…give it a sec, it’ll put a smile on your face!) I’m going to breakdown my resolutions for this year!

“Say everything you’ve always wanted”

This year, I vow to be a bit more strong in my message.  I have always been very careful when talking about things I’d like to promote for fear that it would offend someone or put some sort of label on me.  (Then again, you can’t post ANYTHING these days without offending someone!)  I don’t usually post any of my support for JDRF, American Heart Association, Celiac Disease Foundation, and many others on social media because I fear becoming a “poster child” or “that girl” who’s always pushing her health agenda.  I have no intention of being a poster child pushing any type of agenda, but I should not fear being supportive and helping when/where I can!  From now on, I won’t hide and instead will be more openly vocal about my involvement.  After all, how else does awareness work if you don’t say a word?

On that note, here’s my first step… Jan 5th marks my 2-year kidney-versary!!!  Kirby will have been living strongly within me for two years and I plan on celebrating this every single year in honor of his/the transplant team’s success and the life of my precious donor.  This year, my mom, my sister and I all had our nails done to celebrate Kirby and my donor, and when anyone asks me what the green ribbon is for, I will gladly tell them.  🙂

Kidney ribbon nails 2016

Lucky for me, the green ribbon has many meanings, three of which pertain to me – Organ Donation Awareness, Kidney Disease Awareness, and Celiac Disease Awareness. Kirby, this time, this one’s for you!

“Be not afraid of who you really are”

Part of my resolution above fits this piece of the puzzle.  However there is another shallow part of me that also needs some work.  I had dinner with a very good friend the other night, and as we talked, I was reminded of my flawed self-perception.  I always believed that I was a pretty strong person with a good sense of self, however with every word that came out of my mouth, I realized I still have many improvements to make (don’t we all???).  He helped me see that most of my insecurities were things that are unimportant.  I speak of vanity and my self-confidence.  I have many reasons…no, I rephrase…”excuses” that would justify why I feel the way I do about myself, but I have THOUSANDS more reasons to squash those excuses into dust.  I have so much more to offer than a few wrinkles on my face, some chubby cheeks that show up at odd angles, or a few years that have crept up on me all too quickly.  I have fought some pretty big battles and won them (health and otherwise).  I have made my career my own.  I have never stopped going for what I believe in and have always (eventually) come out on both feet.  Why should I feel bad about those few shallow things I see in the mirror when everything else is so much cooler than that?  2016 will be my year to finally accept myself as the “me” I am now and not the “me” I used to be (who I kept striving to be again).  There is nothing wrong with a smarter, wiser, healthier, and albeit a few years older Nachomama!  🙂   I won’t lie, I will still be attempting to improve my fitness routine in order to look better at an upcoming beach trip, but I also plan on focusing more on the health benefits this time rather than the vanity.  Baby steps…

“‘Cause in the end we have each other…and that’s at least one thing worth living for.”

This resolution is a bit different, and it’s something that has been bothering me for awhile.  Yes, I try to volunteer for various organizations because I believe in their goals.  However, there are times when I still feel as if I can do more.  How can I make a more direct impact?  What do I have to offer?  All I have is what I know, and I believe that we are all encouraged to help others using even just that.  This year, to further my pursuit in philanthropy, I plan on using what I’ve learned via my experiences and knowledge to research how I can further help make a difference.  I will post more on this as I figure it out!

And that, my friends, is my list of resolutions for 2016.  Wait, I have a few more smaller goals (I have to publish them so that you will all hold me to them!):

  • to learn a new culture (I kind of already do this whenever I choose a new book to read, however, it’s fascinating and I plan to do more via travel as well)
  • to lower my A1C score to below 7
  •  to be on a more consistent schedule with my blog…hee!  (maybe I’ll even take off the “snow” that has been falling on this blog continuously for two years!  hahaha… after winter is over, though, of course.)

So, to summarize this exciting initial blog post for the year, I’ll again quote lyrics from this post’s song:

“Another year you made a promise
Another chance to turn it all around
And do not save this for tomorrow
Embrace the past and you can live for now”

Truer words never spoken.  🙂  Can’t wait to hear what your resolutions are!

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Things I’m thankful for today:

1.  My kitchen is starting to finally feel like a REAL kitchen!  Santa brought me some amazing foodie-gadgets that I’ve been eyeing, and one of them was a Kitchen-Aid mixer!!!  WOOHOOO!  If you have ever tried to bake anything from scratch using a mediocre hand mixer and/or spoon, you will understand the excitement.  Thank you Santa!  🙂

2.  A very dear family friend of ours has generously blessed us with the use of their vacation home in Hawaii, so my family is going on its first trip to Hawaii this year!  I’m so excited I could spit!  (I won’t… I’m not a camel…)  However, you can absolutely guarantee I’ll be on the search for Alex O’Loughlin the entire time I’m there!  😛

3.  Vacation time.  For the first time ever, I took off work for the week between Christmas and New Years.  WHY have I never done this before???  Sleeping in, cooking all my meals (ie. not having to eat out all the time), getting errands done… finally, relaxing, binge-watching all my shows on Netflix/DVR… yes, I believe I have finally learned the appreciation of true vacation time.  Now, I’ve got to retrain my sleeping schedule so that I can get up for work next week.  Ugh…

4.  Christmas decorations.  I think I post this every year, but this year was the first time in 4 years I’ve been able to pull out all of my OWN Christmas stuff to decorate my apartment.  I love evenings with the Christmas tree lights on, the fireplace all done up with our stockings, the goofy elf feet and Santa hats I have all over the place!  It’s impossible to come home and NOT feel happy!

5.  My dad has finally found a doctor who could help him with his ankle.  He’s been in tons of pain and has not had an easy time getting around due to injuries that were caused years ago.  Now, hopefully, he’ll be able to walk without pain or a limp!  Yaay!!!  Mom, you’re next!  😀  #TakingCareOfBusiness  #TakingCareOfFamily

 

 

 

Holiday! Celebrate!

One of my favorite parts of the holidays is the food!  Everyone with me on this?  I’m trying to prepare for my impending food-baby belly by being very careful not to overeat before Christmas gets here!  🙂

As someone with Celiac, though, there is one problem – parties/pot-lucks.   I USED to really look forward to seeing what creative specialties everyone brought to the table (literally), however, now it has become my most dreaded thought.  Is there going to be anything I can eat?  If so, which items CAN I eat?  Can I trust the home-made dishes when they SAY they are GF?  Do I really have to ask them for the list of ingredients for every dish?

I’ve learned the safest and easiest way to survive food-based parties is to follow my new eating motto – “When in doubt, leave it out!”  So, instead of being that pain-in-the-ass picky girl asking 50 bajillion questions about the food, I just quietly look for the salami and cheese cubes, and I always bring in a GF dessert that I know I can eat.  That way, I know there’s at least ONE thing I can eat safely…AND it allows me to focus on and enjoy the rest of the party and not have to obsess about just the food.  It’s worked so far, and it keeps me from over-indulging!

Food Buffet2

Dang it! Where are the cheese cubes???

So, in light of the many office pot-lucks and holiday parties that are starting to pop up on our calendars, here is a funny Celiac video to give you a laugh.  😀

Video – What Happens When you Tell People You Can’t Eat Gluten

And yes, I’ve met every single character in this video… several times.

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Things I’m thankful for today:

1.  Beautiful poinsettias!  Thanks to my friend Christi, I have won pretty much any pissing contest regarding the biggest or most beautiful poinsettias in the office!  They are absolutely gorgeous!  Thank you Christi… 🙂

poinsettias

2.  My nail girl who gave me the cutest Christmas nails – all red, with one finger having a Santa belt on it.  🙂

3.  My Christmas stuff!  It’s been about 4 years since I’ve been able to put up my tree, so it was quite literally like Christmas opening up the boxes and going through all the goodies and decorations I had forgotten about.  With all the new stuff I’ve been able to add, I absolutely LOVE my tree now!

4.  Christmas sales.   I was able to stock up on a few cozy, cuddly sweaters at the mall the other day for an awesome bargain!

5.  For that matter, Christmas shopping!  I know I always brag about getting all my shopping done online to avoid the crowds, however there is something warm and fuzzy about being in the midst of all the hoopla.  The decorated windows, the random stocking-stuffer ideas at the cash register (offering things I never thought of), the Christmas music playing, the huge tree in the middle of the mall, the excitement of wondering if the gift I chose will bring a smile to that person’s face, the amazing sales… the amazing sales…

 

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