Category Archives: Health

All That She Wants is Another Baby… (Nope!)

So, I know this topic will seem a bit out of the blue, but it’s one of those topics that I felt I needed to add b/c not many women talk about it.  And so far, none of the blogs I’ve read have ever mentioned it either.  It’s regarding children, or rather, the choice of not having children post-transplant.

dodging kids

A song came on the radio the other day where the man sang about seeing the future of his and his lover’s lives together (with children, etc.) in her eyes (Damn!  To have THAT skill…), and it stuck with me and kind of made me giggle.  What if he was singing that to me, all romantic and mushy, and I had to cut him short and be all “Um… can I stop you there?  Sorry, we need to talk.”

See, I’ve chosen not to have children biologically.  There are a number of reasons why I’ve made this choice, but it seems to be a topic that most women in my situation are shy to say out loud because it can be so controversial.  I have had a couple of boyfriends break up with me because they thought I was “unhealthy” or because I was not willing to have “his” children.  I’m not sorry they are no longer a part of my life b/c it’s obvious that they were never meant for me to begin with.  I’ve even heard someone say, in so many words, that a woman’s life is “worthless” if she doesn’t have children.  I’m sorry that these people feel so strongly for such a shallow point-of-view, and that is why I’m writing this post.

I’ve watched as my friends and coworkers have expanded their families and raised beautiful children of their own, however, whenever the tables turn and I am asked the question that all women without children get – “So, when do you think YOU will have kids?” – I’ve noticed that sometimes when I responded, it was almost apologetically, as if I had to be ashamed of that choice, as if I was embarrassed to go against what society seems to expect of me as a woman to do because I have a uterus.  (I promise, I’m not launching into a woman’s lib speech, bear with me!)

childless meme

Because I can.  🙂

A lot of my choice is based on my medical issues.  While I’ve never been the type of girl who’s always dreamed of giving birth to my own army, it was a big punch in the gut when my doctors – one by one – began telling me how high of a risk I’d be should I ever try to have children.  They all basically told me that if I REALLY REALLY wanted to have a child, they would find a way to make it happen, but they strongly advised me against it saying it could very possibly kill me.

As a woman, the idea of having the ability to give life taken away from me was very sad and disheartening.  It was so final, and yes, I even struggled with the whole “isn’t this what makes me a woman?” question.   Luckily, the feeling was short-lived.   It became just another one of those choices I’ve had to make in order to maintain a healthy life and…well, to actually STAY alive.  I’m not saying that women can’t have babies post-transplant.  Not at all.  A lot of women have successfully had children post-transplant, and a lot of women with Type 1 Diabetes have successfully done the same.  It’s the combination, however, of having Type 1 Diabetes, a transplant, heart issues, and Celiac Disease (which I’ve been reading can sometimes cause infertility), that makes for a very life-threatening situation that I am not ready to risk.  I fought too hard to KEEP this life, I’m not about to lose it any time soon!

Not only that, but most of my health issues are hereditary.  While it’s not guaranteed, I don’t want to take the chance of passing any of my health issues on to a child if I know I have the ability to prevent it.  It’s one thing for ME to have the strength to go through all this, but I would not be able to stomach watching an innocent child suffer through what I had to.  Nope!  Not for me.

Every person is different and it is a very important and personal decision to make.  A human life is not something I’m willing to gamble just for the sake of genetics, or to fit into society’s idea of what my role in life should be.  I HAVE a family.  A WONDERFUL one that consists of my parents, my sister, my relatives, and all of my friends who shape my existence and give me a very fulfilling and purposeful life!  Deciding to be childless post-transplant has been promising for me b/c it’s giving me the opportunity to spend more time with the people I love, and I am not sorry for that.  If this is your decision too, I hope you feel just as confident being able to say the same.  🙂

20170404_133956

My fur babies.  *heart*

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Things I’m thankful for today:

  1.  I have a strong circle of child-free girlfriends who keep me from feeling as if I’m the only person alive not having babies.
  2.  I’m thankful to have parents who have never pressured me or guilted me into feeling as if I had to give them grandchildren.  They love my kitties just as much as I do.  🙂
  3.  Excited that in a month, I’ll be in Austin getting to visit with friends whom I haven’t seen in WAAAAY too long!
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Aliiiiive and Kickin’….

Good news!!!  My doctor informed me that my creatinine numbers are going back down!  (Maria, I think you were on to something with your comment!  ;))  They said that because everything looked good this time, there was no reason to worry about rejection, so for now, I’m in the clear!  Woooohooo!!!

I swear, the first song that came on the radio on my way home was Eye of the Tiger – which is fitting since Kirby is KICKING BUTT!  I just pictured Kirby running up the Rocky stairs with boxing arms swinging saying “Bring it!  I will NOT be taken down!”  😀  It also seemed like every song after was one inspiring song after the next.  Even the rainy, gray clouds cleared and I had sunny, blue skies all the way home!  No joke!  As cheesy as that sounds, I did truly feel as if God was sending me the message to say “everything is gonna be alright!”  Or was that Bob Marley?  I did cry a little out of relief and also from thinking of how much this has stressed my entire family out over the last month.   It’s like a huge weight was lifted off my shoulders.

Boxing-kidney

Now, I just have to make sure I’m an absolute PEST to this pharmacy to ensure that it doesn’t happen again.  I am still trying to negotiate with our benefits team to allow me to switch pharmacies, but that might be on-going and a months-long process, so I’ll keep at it.  I can be incredibly persistent when I have to be.  Hee…

I want to thank everyone who commented, emailed and texted me with your prayers and suggestions!  I truly have the best people surrounding me, and without you, this fight could seem impossible.  Your words helped me stay strong when I went into panic mode, and it really, REALLY helped.  Thank you!

On a similar topic, I’d like to share a special evening I had last week that also helped me stay inspired.  I was invited as a special guest of our Tiffany & Co partners to attend the Taylor’s Gift Awards dinner.  (For those who are unaware of this organization, it’s the only non-profit organization of it’s kind to help promote organ donation.  They also help with financial aid for families having to go through the organ donation process.  For more on their story, which is an amazing story, click here.)  It was a very emotional night as people told their stories, but it was the boost of positivity I needed the day I received the news of my kidney last week.   🙂  Plus, they even raised more than $50K to help the cause!  I’m hoping to be able to donate some time with them in the future!

Taylor's Gift - table pic 2017

Taylor's Gift - cofounder pic - cropped 2017

Me with the Taylor’s Gift co-founders – Tara and Todd Storch. #taylorsgift #outliveyourself

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Things I’m thankful for today:

1.  Kirby is safe and I can breathe easy knowing the pharmacy didn’t ruin my organ!
2.   I have amazing friends & family who are quick to pray and help boost me up when things get rough!
3.  Heather Norris – for thinking of me at the Taylor’s Gift dinner!  I had such an amazing night, thank you!
4.  I finally got to eat my tacos for National Taco Day!

 

I’m a Survivor, I’m Not Gonna Give Up!

I hesitated putting this in writing b/c I didn’t want to put anything bad “into the universe”, but my promise was to share with you all the good and bad about my transplant experience…

Today I have run into the situation that every organ recipient fears the most – rejection.  It’s a huge needle that is popping my dreamlike bubble of post-transplant bliss…and it’s terrifying.

As anyone on anti-rejection meds knows, you have to stay on a very regimented medicine schedule that is imperative to the survival of your new organ or you risk the chance of your body rejecting it.   You are not supposed to miss any doses.  Well, due to the incompetency of my special meds pharmacy, my meds have twice been delayed and I have missed an alarming amount of doses that have now put Kirby in danger.

I just had a clinic visit today where they told me my bloodwork didn’t look good and my creatinine numbers were elevated.  I’m supposed to go back for more bloodwork next week when they will decide if I need to get a biopsy.  I have complete faith that my doctors will do everything they can to help me keep from losing Kirby, but there is still that fear.  The fear of having to go through dialysis again, of having to be sick again, of having to go through the entire painstaking ordeal of a transplant again.   I don’t want to go there again!

The most frustrating part is that this is due to something that is out of my control.  I’ve done everything possible to be the most compliant patient, to follow all the rules in order to keep my kidney safe, and this pharmacy blows the entire thing to pieces with their inefficiency!

I am absolutely being very vocal to our company’s benefits team, our insurance company, the pharmacy, AND my transplant social worker to make sure that this doesn’t happen again.  (They’re getting a good taste of my Irish temper coming to light!)  We’ll soon see if our efforts are successful!  If you have gone through something like this yourself, or know of anyone who has, please share any advice you have to give.  I’ll happily take it!

For now, I’m asking for you to help send positive vibes and prayer that everything goes well and that we can keep Kirby alive and kickin’ for many many more years to come!  It’s NOT his time yet!  I will not allow it!  *Enter me and Rick Astley singing to Kirby here…

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Things I’m thankful for today:

1.  My office chair spins?

2.  There is still hope!

3.  Taco Casa – helps sooth the nerves… a bit.

4.  As my friend, Kerrie, pointed out – if the situation was dire, they wouldn’t wait a week to see me, they would have pulled me in for a biopsy today!  Very true…and I’m very thankful for that!
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