Start Spreading the News

It’s May… (ok, so it’s the end of May) and in Texas, that usually means we need to take advantage of our short month of spring drinking margaritas on the patio and dodging tornadoes every week before having to hibernate inside to avoid the 110 degree summer that’s around the corner.  But what I bet you didn’t know is that it’s also Celiac Awareness Month!  Wheeeeeeee!  (Don’t you feel you can sleep better with this tidbid of trivia???)  Not that I need to be made any more aware of my glorious disease, but I will do my part to help others learn about it and eradicate the ignorance!  🙂  However, since you all have been with me every step of the way in my learning process of Celiac, you already know the basics of how it works, so I won’t drum it into your head.  What I will do, though, is to encourage everyone to at least try one gluten free food this month just to share in the experience of what we in the gluten-intolerant community get to enjoy on a daily basis.  I’ll be honest, if you avoid the bread, gluten free foods do not really taste much different than regular food… Duncan Hines makes some good brownies, and there are lots of good pastas out there that taste just like regular pasta!  My friend Mark even made some KILLER chocolate caramel cupcakes that were gluten free!  Yum!  When you try it, come back here and share with us what you tried!  I’d love to hear what you think!

In addition to that, I’ve also read that it’s Organ Donor Awareness Month!  (I’ve also read that it’s held in April, and if so, I’m a month late, but truthfully, it’s never too late in my opinion.  😉  Here’s a scary thought…in the US, there are more than 118,000 people waiting for an organ transplant, and about 18 people die EVERYDAY just waiting for it to happen!  It’s terrifying to know that there is such a shortage of donors out there, and the shortage is even worse in other countries!  (Maria, I truly do pray that the donor situation improves in Australia so you don’t have to wait much longer for YOUR kidney!!!)

I have to share with you a story I saw on TV the other day… there was a girl in Coppell (a suburb of Dallas) named Taylor who was killed in a skiing accident, and her family decided to donate her organs because, due to the generous character of the girl, they felt that is what she would have wanted to do.  Well, they reunited the people who received her organs with the parents, and it was touching and amazing to hear their stories.  Seeing how much their lives have changed and how they were saved by this girl’s organs was truly inspiring.  I think I cried like a baby the entire time I watched it!  Here’s a clip of the Jeff Probst show with the reunion.  (Fast forward to minute 17:00).  This one girl saved about 3 or 4 lives!  So, to help spread awareness of organ donation, they set up a foundation called Taylor’s Gift that helps people register to be organ donors in literally 5 seconds!  It’s so easy, and if you haven’t signed up to be a donor, please do!  They also are working with OPI nail polish to sell a polish called Taylor Blue where the profits go toward the foundation.  I’ve bought my bottle and below is a pic of my Taylor Blue toe-sies in her honor!  😀

My Taylor Blue Toes

I realize I don’t usually push agendas, but I felt this was a good one to put out there that could benefit thousands of people.  Every little bit helps, and our lives really do depend on people like you!  It’s a scary decision, but if someone else could benefit with life when you are no longer able to use your organs, you could live on through them and do a world of good for the recipient and their families!  And for those who are afraid of being targeted for organ trafficking by being listed as a donor, let me put you at rest.  First, you have to be a perfect match for someone to receive your organs.  No one can just steal your organs (like those rumors of kidneys being stolen and people left in tubs of ice).  How would they know what your blood and tissue type is if you’re a stranger?  It’s impossible, and not likely to happen.  Secondly, someone told me they were afraid that hospitals would not do their best to save your lives if they knew they could use your organs for someone else in need.  A hospital’s main purpose is to keep you alive and they are not going to scrimp on the service of one patient and sacrifice a perfectly healthy person to save one who is dying just for their organs.  It’s illegal.  So, please do not be afraid of being registered.  I realize that some people have religious reasons for not doing so, or are afraid they will look like a mangled corpse once the organs are removed, however, I’ve been told that you would never see a difference in a corpse that has donated their organs, and you can actually choose which organs you feel comfortable donating.  It’s a very personal thing, and a big choice to make, but please consider it.

On a different, more personal update, I’m doing great with my Coumadin treatments for my blood clots (who knew the treatments were so extensive!) and although I might be covered in bruises from the blood thinners, I’m hoping it’s getting rid of the clots!  Unfortunately, they have put me on hold AGAIN for the transplant list until I can meet with a blood specialist to find out what caused the blood clots, but I’m trying to get that taken care of as quickly as possible.  No surgery can happen until I’m back on Active status.  Also, I am planning on starting back to work early June now if all goes well.  I’m looking forward to seeing you all again in the office and getting some normalcy back in to my routine!  🙂

Have a relaxing Memorial Day weekend!

************

Things I’m thankful for today:

1.  Although it’s heartbreaking to see the many lives lost in the Oklahoma tornado, I’m thankful that the they are still finding survivors!

2.  I’m thankful I don’t live in Oklahoma.  For LOTS of reasons.

3.  Candy Crush Saga… my new obsession time waster.

4. My new creation – bacon nachos… um, yum!  Why didn’t I think of this before???

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2 responses

  1. We had some great gluten free desserts from the German Deli in Grapevine. GermanDeli.com

    Ursula

    1. Awesome! I’m going to have to check that out! Barbara would enjoy the German food, too! 🙂

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